This Core Care Pathway has been developed as a tool for professionals who support children with life-limiting and life-threatening conditions and their families throughout their care journey, from diagnosis through to end of life care and bereavement support.

It provides a clear framework for all practitioners and aims to facilitate a care process, supported by good communication between professionals across all care settings. It places the child and family at the centre of the planning process, and provides practical guidance at key stages of a child’s care journey.

Read it in full at