Nearly two-thirds of parents of children with learning disabilities have never been received advice on planning for the future dsepite it being one of their greatest concerns.
Christine Towers of the Foundation for People with Learning Disabilities revealed the statistic as part of the group's session on 'Thinking Ahead' at the Learning Disability Today Live event at London's Olympia Conference Centre yesterday [29 Nov].
The Research and Service Development Manager, at FPLD said: "Families of people with learning disabilities have many day-to-day worries but the overwhelming majority [82% according to FPLD research] are equalled worried that their child will fail to find a sufficient support and a good place to live after they die."
She went on to say that 78% of parents are worried their child will be safe & well in the future while 79% believe they will struggle to make friends because of their disability.
This research was the key motivation for the creation of FPLD's new guide 'Prepared for the Future?' - which can be downloaded here.
The charity also spoke to hundreds of young people with LD and their carers and found that while parents were concerned about their children's future, the children themselves were more worried about being excluded in the planning.
One quoted in the report said, "don't wrap us in cotton wool; we need to learn to cope with negative experiences to avoid being vulnerable".
Key suggestions for parents in the guide includes:
- Talk about the future with both professionals and your children
- Build communities among your family and friends
- Write down notes and plans for the future
In the same session, Robina Mallet from the National Family Carer Network said the guide's concept could be summarised in one key phrase: Personalised Planning & Practice leads to Prevention of future Problems.
For more information on Learning Disability Today London visit www.learningdisabilitytoday.co.uk or search #ldtconf on Twitter
Posted 30/11/2012 by firstname.lastname@example.org